Fig. 1: A flowchart depicting the multiple stages of the study.
From: Identifying challenges in neurofibromatosis: a modified Delphi procedure
The study consisted of two pathways, one for NF experts and one for patient representatives. The expert pathway consisted of two Delphi questionnaires and a consensus meeting, the patient representatives had one survey and a consensus meeting. The final selection of manifestations was done in a final workshop. CTF Children’s Tumour Foundation, NFPU Neurofibromatosis Patients United, WP7 clinicians clinicians involved in work package 7 of the EU-PEARL project, dedicated to neurofibromatosis.
