Table 2 The different user roles and their capabilities in Dwarna.

From: Dwarna: a blockchain solution for dynamic consent in biobanking

Role

Capability

Biobank manager

Create, edit and remove research partners, researchers, and studies

 

View a list of research partners who consented to the use of their biospecimen and data in research studies

Researcher

View aggregate data about research partners who consented to the use of their biospecimen and data in their associated studies

Research partner

Give or withdraw consent to have their data used in a research study

 

View a trail of their past consent changes

 

Request that the biobank destroys their biospecimen and personal data

General public

View videos, governance documents and other information about how the Malta Biobank operates

 

Indicate their interest in providing a biospecimen and data to be used in research studies

 

View updates about research studies on the Dwarna blog