Table 3 Disclosure strategies when the patients approached close and distant relatives.

From: Patients’ perceptions and practices of informing relatives: a qualitative study within a randomised trial on healthcare-assisted risk disclosure

 

Disclosure strategiesb

Study group

ID

Sex

ARRa

1.1 Just doing it myself

1.2 Seeking assistance from family members

1.3 Utilising the offer of direct letters

1.4 Vaguely relying on others to inform

1.5 Postponing or deciding not to

INTERVENTION

I #6

F

C

C (D)

-

C

(D)

(D)

I #8

F

C

C

-

C

-

-

I #9

F

C

C

-

C

-

-

I #10

F

C, D

C

D

C, D

-

-

I #11

F

C

C

-

C

-

(D)

I #12

F

C

C

-

C

-

-

I #13

M

C

C

-

C

-

-

I #15

M

C, D

C

-

C, D

-

-

I #17

M

C, D

C, D

D, (D)

C, D

-

-

I #19

M

C, D

C

D

C, D

(D)

-

CONTROL

C #2

F

D

D

D

Not offered

-

-

C #4

F

D

-

D

Not offered

-

(D)

C #5

F

C

C

-

Not offered

-

-

C #7

F

C

C

-

Not offered

 

-

C #14

M

C

C

-

Not offered

(D)

-

C #16

M

C, D

C, D

-

Not offered

(D)

-

C#18

M

C, D

C, D

-

Not offered

-

-

  1. M male, F female, ARR at-risk relative, C close relative, D distant relative.
  2. aPresence of eligible ARR according to study documentation in the RCT. C refers to presence of one or more close relative(s) (first-degree ARRs) and D refers to presence of one or more distant relative(s) (others than first-degree ARRs). The number of close and distant ARRs was documented by the genetic healthcare professional involved in post-test counselling.
  3. bStrategy used when approaching relatives. C refers to strategy used when approaching one or more close relative(s), D refers to strategy used when approaching one or more distant relative(s) (others than first-degree ARRs), (D) refers to strategy in approach to distant relatives that the patient perceived to be at risk, but the distant relative(s) were not listed as ARRs by the genetic healthcare professional.
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